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  1. #1
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    I'm finally getting an MRI to hopefully give me some answers to the sciatica issues I've been dealing with for like a year now; coincidentally my grandma's getting a PET scan today due to some concerning spots in her lungs. Meh. My heart really goes out to anyone dealing with chronic pain. Mine's mostly mild with occasional moderately terrible days and even that's been enough to make me lose my mind due to it just being a thing that's constantly there.

  2. #2
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    Brexit.

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  4. #4
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    Our youngest threw us a curve ball on Monday. I dropped her off at school, and about two miles down the road I immediately got a call to come back. She had a seizure, fell out of her wheelchair and hit her head on the tile (apparently she sneakily unbuckled herself from her chair at one point) then continued to seize for quite a while until I got back to the school. Paramedics came and took us to the local ER, who then transferred us to St Louis Children's hospital where the whole family has remained since.

    She's okay, no fractures or anything from the fall. It's normal for her to have seizures, but they've been getting more frequent and it's unusual for her to have them go this long. She didn't break anything, thankfully. But man, it's MISERABLE to be stuck in a shared hospital room with a pissed-off kid while she gets her seizure meds changed and we do the whole MRI/CT/EEG dance for the tenth time this year.

    We should be able to leave by Sunday, assuming the medication transition goes okay. I know I'm friends with some of ya'll on social media, we haven't said anything on there about this because we have some family members who make everything that happens with Katherine ten times more stressful than it needs to be.

    So i'll just gripe about expensive, nasty hospital food and stress out over our kid here instead. :P

  5. #5
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    Quote Originally Posted by eachpassingphase View Post
    Our youngest threw us a curve ball on Monday. I dropped her off at school, and about two miles down the road I immediately got a call to come back. She had a seizure, fell out of her wheelchair and hit her head on the tile (apparently she sneakily unbuckled herself from her chair at one point) then continued to seize for quite a while until I got back to the school. Paramedics came and took us to the local ER, who then transferred us to St Louis Children's hospital where the whole family has remained since.

    She's okay, no fractures or anything from the fall. It's normal for her to have seizures, but they've been getting more frequent and it's unusual for her to have them go this long. She didn't break anything, thankfully. But man, it's MISERABLE to be stuck in a shared hospital room with a pissed-off kid while she gets her seizure meds changed and we do the whole MRI/CT/EEG dance for the tenth time this year.

    We should be able to leave by Sunday, assuming the medication transition goes okay. I know I'm friends with some of ya'll on social media, we haven't said anything on there about this because we have some family members who make everything that happens with Katherine ten times more stressful than it needs to be.

    So i'll just gripe about expensive, nasty hospital food and stress out over our kid here instead. :P
    I hope the docs are able to do something for you & your family. Take care.

  6. #6
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    Quote Originally Posted by chuckrh View Post
    I hope the docs are able to do something for you & your family. Take care.
    Thank you. We are home now and she seems to be taking well to the new meds.

  7. #7
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    That sounds so stressful and horrible. I'm sorry.

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    Some of you might have noticed i wasn't around much the last week, that's due to my grandad having had to go back into hospital again...and unfortunately this time he didn't make it out. At 11:15 this morning he passed away with all of his family at his bedside, it was all pretty horrific honestly. He went from being able to hold a conversation with me about football on monday, to just becoming skin and bone, unable to even move or acknowledge we were even there by this morning. We had all realized this was most likely the end, but it's still really fucking difficult to process!
    To make the situation just that little more fucked, he ended up dying in not only the same hospital, but same ward as my aunt less then 6 months ago (which my uncle was still devastated about) and will be the same hospital my little sister will be going to for her last scan on her 3rd kid...so we're all going to be back there when she drops this week.

    This is going to take some time to process honestly...

  9. #9
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    Quote Originally Posted by Haysey View Post
    Some of you might have noticed i wasn't around much the last week, that's due to my grandad having had to go back into hospital again...and unfortunately this time he didn't make it out. At 11:15 this morning he passed away with all of his family at his bedside, it was all pretty horrific honestly. He went from being able to hold a conversation with me about football on monday, to just becoming skin and bone, unable to even move or acknowledge we were even there by this morning. We had all realized this was most likely the end, but it's still really fucking difficult to process!
    To make the situation just that little more fucked, he ended up dying in not only the same hospital, but same ward as my aunt less then 6 months ago (which my uncle was still devastated about) and will be the same hospital my little sister will be going to for her last scan on her 3rd kid...so we're all going to be back there when she drops this week.

    This is going to take some time to process honestly...
    big hugs, friend. hope your family is able to heal and celebrate his life. <3

  10. #10
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    So things are going as i expected. The fallout of my grandad's passing has hit my nan hard. Her dementia has gotten so bad in just a week she cannot remember he has actually passed away, or that my sister has giving birth (though that has been the good news, the birth went OK and mum and daughter are both healthy thankfully) She is also repeatedly saying she wants to die with him...we're not sure how long she'll last without him

  11. #11
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    I'm so sorry to hear that @Haysey That is really tough

  12. #12
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    Quote Originally Posted by ickyvicky View Post
    I'm so sorry to hear that @Haysey That is really tough
    Thank you, things really aren't great right now but there are some sliver linings.

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    Next week I was set to have my first full hour time slot instead of a lightning round or panel at an academic conference. And they just cancelled it because of fucking Coronavirus. COME. ON.

    I'm only in an MS program, and it's HARD AS FUCK to break that barrier to be a featured speaker as a PhD candidate... let alone as a lowly Master's student.

    My PhD application cycle will be in about six months, and I'm not sure if I'll get another opportunity like this, as we are midway through the semester so the next two months my focus will have to be on final papers. And during the summer, GRE prep... I was really banking on this to give me an edge on my applications.

    I'm working with a professor to turn a couple of research papers into pieces worthy of submission to academic journals. She is confident that I will have at least one piece under review, and maybe accepted in time. But holy shit being able to put this on my CV would have been an absolutely huge advantage for me. I've been prepping for months.

    FKDHJKHJVSNKJSDN

  14. #14
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    That really blows. I'm sorry. I understand the PhD rat race.
    That does seem ridic for an interview panel process. A whole massive sweaty music crowd? Sure, but a composed, collected audience who can keep their distance and wash their hands.... that just sucks. Good luck.

  15. #15
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    My wife noticed a lump at the top of her right breast two weekends ago and got in to see a doctor late last week. The appointment was quick and the doctor flat out said she didn't know what it was and they'd schedule a radiology appointment ASAP.

    She had that appointment on Wednesday where it was discovered she has a bunch of cysts in both breasts along with another lump in her left. The doctor was concerned about both of the non-cyst lumps and had biopsies done on both.

    The results came back around 9:30 am today. It's cancer in both. The left is ductal carcinoma in situ which is "good" because it hasn't yet spread from the milk ducts and is easy to control and eliminate. The right is invasive ductal carcinoma meaning it has spread from the milk ducts and is growing. It may have spread to lymph nodes but we don't know yet if it has. The doctor said that despite this, it was still caught early so it's promising.

    She's got an MRI on Tuesday and then a surgical consult on Friday and we'll know more then. In the meantime, her OB/GYN called and said she has to stop taking birth control immediately due to the hormones impacting her breasts and she's going in for an IUD installation (not sure what the word is) on Monday.

    It's been a fucking day.

  16. #16
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    Quote Originally Posted by klyrish View Post
    My wife noticed a lump at the top of her right breast two weekends ago and got in to see a doctor late last week. The appointment was quick and the doctor flat out said she didn't know what it was and they'd schedule a radiology appointment ASAP.

    She had that appointment on Wednesday where it was discovered she has a bunch of cysts in both breasts along with another lump in her left. The doctor was concerned about both of the non-cyst lumps and had biopsies done on both.

    The results came back around 9:30 am today. It's cancer in both. The left is ductal carcinoma in situ which is "good" because it hasn't yet spread from the milk ducts and is easy to control and eliminate. The right is invasive ductal carcinoma meaning it has spread from the milk ducts and is growing. It may have spread to lymph nodes but we don't know yet if it has. The doctor said that despite this, it was still caught early so it's promising.

    She's got an MRI on Tuesday and then a surgical consult on Friday and we'll know more then. In the meantime, her OB/GYN called and said she has to stop taking birth control immediately due to the hormones impacting her breasts and she's going in for an IUD installation (not sure what the word is) on Monday.

    It's been a fucking day.
    that is fucking awful. i'm so sorry. fingers crossed she pulls through all this and everything comes out peachy. hoping you have good health insurance. love to you both <3

  17. #17
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    Quote Originally Posted by klyrish View Post
    My wife noticed a lump at the top of her right breast two weekends ago and got in to see a doctor late last week. The appointment was quick and the doctor flat out said she didn't know what it was and they'd schedule a radiology appointment ASAP.

    She had that appointment on Wednesday where it was discovered she has a bunch of cysts in both breasts along with another lump in her left. The doctor was concerned about both of the non-cyst lumps and had biopsies done on both.

    The results came back around 9:30 am today. It's cancer in both. The left is ductal carcinoma in situ which is "good" because it hasn't yet spread from the milk ducts and is easy to control and eliminate. The right is invasive ductal carcinoma meaning it has spread from the milk ducts and is growing. It may have spread to lymph nodes but we don't know yet if it has. The doctor said that despite this, it was still caught early so it's promising.

    She's got an MRI on Tuesday and then a surgical consult on Friday and we'll know more then. In the meantime, her OB/GYN called and said she has to stop taking birth control immediately due to the hormones impacting her breasts and she's going in for an IUD installation (not sure what the word is) on Monday.

    It's been a fucking day.

    yeah, that's a fucked up day. Jesus. I hope everything goes well for you and your wife.

  18. #18
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    Quote Originally Posted by klyrish View Post
    My wife noticed a lump at the top of her right breast two weekends ago and got in to see a doctor late last week. The appointment was quick and the doctor flat out said she didn't know what it was and they'd schedule a radiology appointment ASAP.

    She had that appointment on Wednesday where it was discovered she has a bunch of cysts in both breasts along with another lump in her left. The doctor was concerned about both of the non-cyst lumps and had biopsies done on both.

    The results came back around 9:30 am today. It's cancer in both. The left is ductal carcinoma in situ which is "good" because it hasn't yet spread from the milk ducts and is easy to control and eliminate. The right is invasive ductal carcinoma meaning it has spread from the milk ducts and is growing. It may have spread to lymph nodes but we don't know yet if it has. The doctor said that despite this, it was still caught early so it's promising.

    She's got an MRI on Tuesday and then a surgical consult on Friday and we'll know more then. In the meantime, her OB/GYN called and said she has to stop taking birth control immediately due to the hormones impacting her breasts and she's going in for an IUD installation (not sure what the word is) on Monday.

    It's been a fucking day.
    I'm so sorry. I can't imagine how horrible that must feel. I hope her treatment is swift and effective. I hope the best for you both.

  19. #19
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    I’m glad it was caught early and I hope your wife has a speedy recovery. Sorry you’re going through this.

  20. #20
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    Oh no, I'm so sorry. All the best to you and your wife, that is so scary.

  21. #21
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    @klyrish it’s good that they caught it so early; I have many friends who fought breast cancer and beat it. Thinking positive thoughts for your wife in her battle. You, too!

  22. #22
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    Thanks, all. I appreciate it. We decided to take a timeout this weekend and just be lazy, eat poorly, and drink a lot of wine since this is likely the end of normalcy for a while. Reality starts up again tomorrow.

  23. #23
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    So this year just keeps hitting me down...

    After losing my grandad (which was difficult enough) my mother choose toi move in with my gran alone with my sister, so they told their landlord they are out at the end of their lease in July and reduced her hours. My gran has now decided she wants to live alone and move into a flat because living there is too painful, so my mother has fucked herself...and blaming everyone else. The family are now at each others throats and we haven't even had the funeral. Speaking of which...

    The funeral is Monday, but it's looking like the UK will be in lockdown by then. I have no idea what happens then, but it's sounding like we'll lose a large chunk of the money paid for it. So far it's cost over £4k, which was paid for by the sale of my grandads car. None of us have the money to repay for another funeral...

    Speaking of the lock down, i'm now panicking about my job thanks to our office basically saying the group cannot operate in a lock down. My dept can, but the group won't and as such we could be looking at reduced wages even if we're working. This hasn't been helped by my landlord upping my electricity rates, so if i'm suck at home i'll be even worse off...

    The one bit of good news, my niece being born just after my garnddad died, has now taken a turn as she is currently being tested for Downs Syndrome. I can't even go and see them as my sister is now is self isolation. As is my dad now after developing a new cough, and he is in the risk group...

    And everything i had planned to do with my friend before she moved to canada in June has now been cancelled. I'm not even sure i'll get to see her before she goes now.

    ...i'd just like something to go right this year. Just ONE thing.

  24. #24
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    sorry, @Haysey
    hope things get better soon <3

  25. #25
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    My internet is dead. Repair person not coming out until Sunday morning. FML.

  26. #26
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    Man. I'm quick to unfriend people on facebook or whatever without thinking too much of it. I had unfriended someone like a month ago and we were on a group Zoom call together a couple of weeks ago and she was... not doing well. Drinking straight from the bottle, basically got naked, filled her hand with Klonopin and asked if she should take them all, etc. Then at the end of the call as we were getting ready to hang up after like 4 hours, she was like SARAH I LOVE YOU. And I was like "Haha yeah" thinking it's just drunk I love you time. But then she kept rambling on and I couldn't really understand what she was saying, and what I could hear was confusing. Then one of our other friends asked if I had unfriended her. And I said yes. Again, not thinking it's a big deal. The call ended shortly after that.

    While I know that this wasn't the only thing that was going on, she was genuinely upset about it. I made a note to myself to check in with her in a couple of days to be sure she was okay. I never fucking did it.

    One of the other friends reached out to her partner a couple of days ago because she was MIA. Today he got back in touch and said she tried to kill herself last Wednesday by taking a shitload of insulin. She's still in the ICU. On dialysis, can't feel or move her legs, one of her eyes is fucked up because of the way she was passed out it was open for hours, her brain is swollen, they did an MRI and she had a stroke. He's not sure what is temporary and what is permanent. Can't visit because of Coronavirus. Can't get in touch with people at the hospital to give him updates because I imagine most hospitals are overtaxed right now.

    Fuck. Now she's in there all alone.

  27. #27
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    Yesterday I found out my cousin is stopping dialysis. Basically she's done. I forget what she has but it's some auto immune disease. She's already had 2 livers and a kidney and needs both currently. I guess she found out she's off the donor list last month and decided to essentially call it. She's a few years older than me 47(?). Shits intense. I get it she's been sick her whole life but still it's tough. My moms and sister are going to visit on Friday to see her before she dies as she has maybe a couple weeks left. As I said I get it but still the whole thing has me a bit fucked up. The one up side is I feel like I made the right choice moving near my immediate family this last go. Hopefully I can see her one more time. Be safe out there people, family of any kind are what really matters.

  28. #28
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    I'm so sorry :-(

  29. #29
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    Well, I was ready to post a whiney-ass comment in this thread about my fucked up day, but decided to read a few pages of previous posts, and now I have a new found perspective. Although my day was quite disappointing, it's not really anything I should be complaining about.

  30. #30
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    pretty sure one of my closest friends ended our relationship yesterday. having a hard time not feeling like a bad person. keep vacillating between anger and depression.

    edit: oh, cool, and now this:



    well i picked a great fucking time to start HRT.

    this is devastating.
    Last edited by eversonpoe; 06-12-2020 at 04:13 PM.

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