Life in general: does it suck or is it awesome?

[miss k bee]

So sorry to hear about this.

My grandmother has had severe dementia for over two years now and it's been one of the toughest things I've ever gone through. My grandfather is her primary caretaker and I'm kind of his main backup. I'm there helping probably 3 or 4 evenings during the week and then a whole bunch on the weekends. My aunt and my mom also help out quite a bit too.

My number one main bit of advice would be to take good care of yourself. Seriously, "caretaker burnout" is a very real thing. Taking care of someone with dementia can be such a physically and emotionally draining experience. So definitely seek out any and all resources you can from the state, family and friends, whatever. Anything that makes your life easier, do it. And never forget to take time for yourself and do something you enjoy.

Thanks. I have sort of come to terms with it now that this is Dad Version 2.0. We have carers coming in three times a day for personal care but from next month have to register with another care agency to increase the care package and sort out all the legal and financial stuff. Luckily my Dad was mainly ok settled over Christmas. Its a tough road.