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Thread: How fucked was your day?

  1. #1171
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    I had to go to the hardware store. I wasted 2 hours going there and back. The stupid clerk distracted me with Canadian Tire money and forgot to give me my bag. I was carrying another bag from Walmart so I didn't notice I was missing my stuff until I was 3 blocks away and on a moving bus.

  2. #1172
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    Holy shit, @NotoriousTIMP . That is metal, though.
    @ton Prednisone is the worst. I was given it frequently during my battle with leukemia as a kid, and it permanently blew up my head/face. Iíve since had doctors trying to prescribe it for other things Iíve had as an adult and have told them clearly Iíll never take prednisone again. Hopefully itís not a high dose and a short course of it youíre taking.

  3. #1173
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    Quote Originally Posted by Swykk View Post
    Holy shit, @NotoriousTIMP. That is metal, though.
    @ton Prednisone is the worst. I was given it frequently during my battle with leukemia as a kid, and it permanently blew up my head/face. I’ve since had doctors trying to prescribe it for other things I’ve had as an adult and have told them clearly I’ll never take prednisone again. Hopefully it’s not a high dose and a short course of it you’re taking.
    I'm so sorry you went through that as a kid. I'm glad you are better now though. I had a friend with the same disease when she was little and she didn't make it. I agree that Prednisone is a rather dangerous drug with serious withdrawal effects. I am not on a large dose, it's tapered down every week so I don't have to take it anymore when I'm done.

  4. #1174
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    Just found out my other dog has cancer

  5. #1175
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    I’m sorry to hear this, @Jinsai . Wishing you and your dog the best.

  6. #1176
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    fairly crappy day yesterday. had a long meeting with rheumatologist. have an extremely nasty version of RA. they are giving me cancer drugs for it & had an all day infusion friday. still pretty sick from that. anyway, spine is being attacked now & the results from a MRI are in. looking like some major spine surgery in my future. future is very murky as in disability retirement looking likely in near future. been fighting that for over 5 years & am wore out. & also found out about new extra hoops for pain meds. i'm ok as i follow the rules & haven't abused anything. extra hassles & hoops of fire here or coming. the government & insurance companies involved now. of course, rather than take a look at the source of the problem, they go after the people who really need & aren't the problem. all the chemo does for me is slow down the progression of the disease & i live in constant severe pain. it never stops as all of my joints are slowly being destroyed. RA isn't cancer but it's within spitting distance. it just takes longer. sorry to vent. feeling pretty crappy & down.

  7. #1177
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    @chuckrh , sorry to hear that, it seems that we are from the same era, going into "retirement" with any physical problems just sucks.

    I remember my late father-in-law telling me (God rest his soul), "the most IMPORTANT thing in life is your health" and he was SO right.

    Hoping you can find a way to be happy and feel good, somehow, with this shitty medical "system" of crooked profits in this country.

    I've been reading a LOT about self-healing and how that is SO powerful. My husband's cousin is on a medical marijuana Rx for a bad spinal injury, but it isn't transferrable to all states (he's a roadie for a blues guitarist). Ugh, NOT covered by insurance because it's Federally illegal.
    Last edited by allegro; 11-21-2017 at 11:56 PM.

  8. #1178
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    Quote Originally Posted by allegro View Post
    @chuckrh, sorry to hear that, it seems that we are from the same era, going into "retirement" with any physical problems just sucks.

    I remember my late father-in-law telling me (God rest his soul), "the most IMPORTANT thing in life is your health" and he was SO right.

    Hoping you can find a way to be happy and feel good, somehow, with this shitty medical "system" of crooked profits in this country.



    I've been reading a LOT about self-healing and how that is SO powerful. My husband's cousin is on a medical marijuana Rx for a bad spinal injury, but it isn't transferrable to all states (he's a roadie for a blues guitarist). Ugh, NOT covered by insurance because it's Federally illegal.
    ya, something needs to be done about the medical marijuana. i live in washington state but my employer doesn't have to follow state law regarding that & doesn't allow medical let alone recreational. it is a big horrible multinational in the military industrial complex. i'm a ghost in the machine. i was in the music biz for 25+ years until it went away. was quite the culture shock. the only good thing is the medical insurance (getting worse every year) & the family medical leave act.

  9. #1179
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    Quote Originally Posted by chuckrh View Post
    fairly crappy day yesterday. had a long meeting with rheumatologist. have an extremely nasty version of RA. they are giving me cancer drugs for it & had an all day infusion friday. still pretty sick from that. anyway, spine is being attacked now & the results from a MRI are in. looking like some major spine surgery in my future. future is very murky as in disability retirement looking likely in near future. been fighting that for over 5 years & am wore out. & also found out about new extra hoops for pain meds. i'm ok as i follow the rules & haven't abused anything. extra hassles & hoops of fire here or coming. the government & insurance companies involved now. of course, rather than take a look at the source of the problem, they go after the people who really need & aren't the problem. all the chemo does for me is slow down the progression of the disease & i live in constant severe pain. it never stops as all of my joints are slowly being destroyed. RA isn't cancer but it's within spitting distance. it just takes longer. sorry to vent. feeling pretty crappy & down.
    I understand your frustrations. My mom has RA. I have peripheral neuropathy (very likely from chemo, spinal taps and full body radiation I had multiple times as a kid to defeat leukemia). It’s okay to vent. It’s hard being in pain every day and it’s not the most visible kind of ailment.

    I’ve heard cryotherapy can be helpful for certain types of RA. Is that an option for you?

    Back surgery is definitely serious business. I hope you come out feeling better.

  10. #1180
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    Quote Originally Posted by Swykk View Post
    I understand your frustrations. My mom has RA. I have peripheral neuropathy (very likely from chemo, spinal taps and full body radiation I had multiple times as a kid to defeat leukemia). It’s okay to vent. It’s hard being in pain every day and it’s not the most visible kind of ailment.

    I’ve heard cryotherapy can be helpful for certain types of RA. Is that an option for you?

    Back surgery is definitely serious business. I hope you come out feeling better.
    Thank you. Everything is on the table as I've been through all the RA drugs. Rituxan is kind of the end of the road. All it is doing is slowing the progression a little & it gives me a bit of relief for 3 months. Then it is over the cliff. There is a brutal twist with it though, besides the side effects. I do 2 rounds every 4 months. Problem is that it lasts 3 months. The insurance companies will only allow usage every 4 months. So, in effect I'm totally fucked for 25% of the year automaticallly. & it suppresses my immune system, so now if I get a cold it tends to go to pneumonia. That happened with the NIN Vegas show. I booked the trip (with little notice if you remember). 3 days later I get a cold that quickly goes to pneumonia. By the time of the trip, I had started coming back a bit & said fuck all, I'm going. First 2 days of the trip, I was ok-ish. Luckily the show was in that period. Woke up the next day absolutely ill again. Getting home was an adventure. It was worth it though as it was a stellar show. I am going to 1 of the most highly rated rheumatologists in the northwest & he consults with other docs as my case is very rare. You never want to hear your case is interesting at the rheumatologist! I have 1 more round of poison, then will gut out the holidays. Have to change isurance end of year & after that we go into doc-a-palooza mode. I suspect big changes coming in 2018.

  11. #1181
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    Chuck, I'm so sorry to hear about your struggles. A former co-worker of mine ended up leaving his job due to this. He and I still have lunch once in a while and his stories are really similar to yours, particularly dealing with our sometimes the less-than-welcoming health care system. My heart goes out to you. Chronic pain is an terrible thing to have to deal with.

  12. #1182
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    Quote Originally Posted by Mantra View Post
    Chuck, I'm so sorry to hear about your struggles. A former co-worker of mine ended up leaving his job due to this. He and I still have lunch once in a while and his stories are really similar to yours, particularly dealing with our sometimes the less-than-welcoming health care system. My heart goes out to you. Chronic pain is an terrible thing to have to deal with.
    thank you. i've put up a pretty good fight. the docs are amazed that i've operated at a high level for as long as i have. things have definitely taken a turn for the worse this year. i've been preparing for it mentally for quite awhile. i've worked hard my whole life & it will be an adjustment. my friendgirl thinks i should write. is something i've thought about for a long time. wasn't possible while working as that took all my energy & more. i have a lot of time off (some good, some bad) in december so hopefully i'll be able to recharge during the holidays. i usually go to vegas for christmas but not going to do that this year. in frugal mode, haha. i splurged on the NIN trip & was glad i did. some will think this is heresy but i think it is quite possible that trent is in his best zone ever right now. the partnership with atticus ross is an excellent one. i watched atticus fairly close at the show at times & he is an intense musician. in fact, the whole live band was stellar this year. glad i got to a standalone show rather than a festival. was worth the pain, haha.

  13. #1183
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    I ended a relationship. I was tired of him flirting with other girls. And I have to go to physio because my back is killing me. I think I'll just hang out at ETS from now on. Everyone else in my life has let me down.

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